Sadly the wee man’s fight is over. Leon Rendle has lost his battle with the rare form of cancer called Ewing’s Sarcoma which affects fewer than 30 children in the UK.
Leon fought a brave battle and underwent intensive chemotherapy and a stem cell transplant. Leon was in remission but unfortunately the cancer returned, with doctors describing it as incurable.
”Hey everyone, We’re heartbroken writing this, Our Gorgeous Boy Leon passed away peacefully and gained his Angel Wings at 00.33 am this morning.”
The mother of a teenager with incurable cancer has described her family’s struggle after she juggles work to spend time with him.
Leon Rendle, 15, has incurable cancer, but mother Nicky won’t get paid time off to be with her son.
At just 15 years old, Leon should have all the time in the world to do all the things he wants to do.
Lazy days playing games on his Xbox, Saturday morning football, watching Hibs and his favourite television shows, just hanging out with his friends, or getting his head down at school for fourth year exams and work experience.
Time, though, is the one thing he doesn’t have.
Just a few weeks ago, hundreds cheered on Leon as he carried the Queen’s baton past Meadowbank, having been chosen for his courage after a long battle against cancer which he had finally seemed to have won.
What many who saw him run – with a dazzling broad smile on his face throughout – couldn’t possibly know was that days before Leon and his family had been given the worst news possible.
Not only was the cancer back, this time it is incurable.
Faced with their own race against the clock, Leon’s family today paid tribute to his incredible bravery and spoke movingly of their hopes to spend as much time as possible together before it’s too late.
But because mum Nicky doesn’t get paid for the time she takes off work, the family has faced a financial nightmare to spend as much time as possible with Leon and still make ends meet.
Family and friends have rallied around, raising nearly £4000 through a Justgiving page set up by a relative to help them cover not only the extra costs of Leon’s hospital stays and treats to make his life more comfortable, but the typical expenses of day to day life.
And there are hopes that a fund – tentatively named Leon’s Light – might eventually be set up, not only to get Leon’s family through the nightmare months ahead but to help other families like them in the future.
“We don’t know exactly how much time Leon has left, it’s not a question we want to ask his consultant,” says Nicky. “We are taking it step by step and trying to be positive.
Leon Rendle’s battle against an incurable form of cancer sparked a fundraising drive to help mother Nicky, 42, take time off work to be with him.
Since the news broke , the Lochend family has been inundated with donations and messages of support.
He will receive a VIP day with his favourite team Hibernian FC who have invited Leon, 15, to watch a training session and to have lunch with the players. The Leith Academy pupil will also watch the Easter Road team turn out from the comfort of the Directors’ box in the coming weeks.
An online fundraising page to help the family has swollen by more than £1400 in just five days – a major boost to the £4000 already raised by friends and family who rallied to cover costs after Leon was admitted to hospital.
I am delighted to say that St. Patrick’s Branch members have added £3740 to Leon enjoying himself whilst he is still well. A massive St. Pat’s thanks to Branch members, including our Branch contribution, a brilliant £3320 raised by James (Yan) and Peter who organized a fundraising smoker, Gordon in New Jersey USA , Brian in Qatar and Tam Young and his fitba pals in Germany.